On May 4, 2022, the NIA is hosting an exploratory workshop to discover what gaps exist in the current Real World Data (RWD) infrastructure and what opportunities lie in expanding the availability of RWD sources for aging and research on Alzheimer’s disease and related dementia.
Specifically, researchers will highlight gaps and opportunities to:
- Securely access health data (e.g. electronic medical records, claims, genetics, etc.) from private data providers and academic institutions to gain insight into the trajectory of Alzheimer’s disease and related dementias
- Identify opportunities to develop a platform for a digital cohort in Alzheimer’s disease and related dementias that serves as a diverse recruitment pool (i.e. Recruitment as a Service) for clinical trials in extramural divisions of the NIA (e.g. drug trials, prevention trials, dementia care interventions)
- Analyze sensitive RWD through secure cloud workspaces while protecting the privacy of study participants
- Collaborate in partnership with healthcare and community health providers to enable rapid drug trials to initiate pragmatic integrated clinical trials to improve care for older adults with multimorbidity, including dementia
Stakeholders will focus on identifying and prioritizing gaps and opportunities that exist in the current RWD infrastructure that require further exploration to support research on aging and Alzheimer’s disease and related dementias.
Learn more about the workshop.